Howdy out there! Lovey Levin has had appointments with a pediatric gastroenterologist and a pediatric allergist in the last few months. My husband and I have decided to start the process to a proper diagnosis of Celiac so there will be no issues when he starts school. We thought it would take much longer than what it has to start this process, we were thinking months rather than days and weeks. It is the beginning of March and we should know by the end of March if he truly has Celiac or not.
It started with an appointment with the Pediatric Gastroenterologist, he took our history and food logs over the years and reactions to gluten (it’s been almost a year since his last one). He referred us to a an allergist to have him skin tested also, for gluten sensitivity. Lovey passed the skin prick tests for all common allergens, including topical gluten. Then he had a blood test, testing antibodies for gluten and those also came back below 4. We knew they would as he has been gluten free for nearly two years. So on February 6 we started his gluten challenge with many bated breaths.
Much to our surprise there was no rash, no diarrhea, no refusals of food. In fact, this kid was in gluten heaven. We allowed goldfish crackers to begin with then he had an English Muffin, then a bagel daily. He had pizza one night, and he even identified it as “gluten pizza”. We don’t tell him he is eating gluten because there is still a chance that DOES have Celiac and we would have to go back to a gluten free lifestyle. His only symptoms so far, if they are related, are multiple #2 a day – soft but not runny, he developed a rash across his abdomen, and he has been complaining of his legs hurting. I’ve made note of all of these things. He will go in next week for his next blood test. If his numbers are high, they will do the endoscopy.
Going gluten free should not be a problem for our household as I am now doing Auto Immune Protocol Paleo (AIP), for my own health, which is completely gluten free. We are curious to know what is going on with our little man and why he was unable to tolerate gluten.